A short update as to the days events.

Jamie, Scott and Dar made it to all appointments without complications.

Dr Darwin gave Dar a clean bill of health as far as her lungs are concerned. They are clear and sounding good. Dr Darwin did order a complete blood work up that will be done by home health tomorrow. Dr Darwin also is wondering if Dar my be reacting to the new Amantadine and was wondering if we could stop for a few days. In my research before beginning the med I learned that you just don't stop, you have to back off slowly.

I emailed Dr Doherty and she said that it would be worth a try to back off over 5 days and then evaluate again. If we see no change then we will stop and regroup. I will begin giving Dar 2.5mls instead of 5mls tomorrow morning. Time will tell.

Dr's visit to Dr Lang was good also, he gave us a 90 day script for a UTI med that is very effective. He did say that as long as Dar has the foley we are always going to show signs of bacteria. Home test will always show positive. he told us we know her best and if we suspect a UTI than go ahead and use the new med, again time will tell.

On a brighter note, Mike Hopkins from Dynasplints will be coming to the house soon to fit Dar for her new arm splints. This is the same company that supplied the splints for Dar's legs so many months ago in the bay area. The use of these splints on Dar's legs was a total success and we now enjoy full range of motion. I can only be optimistic that we will see the same results for her arms and wrists. These splints are state of the art, even used in the world of Veternary Medicine.

I have been really pusing hard to get these splints for Dar, we did run into a major roadblock recently because Dynasplints was not going to provide them because of an outstanding balance from her leg splints. It seems that Blue Cross paid the first two months but then decided that the use was not medically neccessary, infact they said it was more investigative, what a load of crap, well Dynasplints is appealing the decision and I too have filed a grivence with Blue Cross. Unfortunatley, the balance needs to be paid. I told the very nice account clerk from Dynasplints that as soon as they got someone to the house to fit Dar for the splints I would personally write a check for the balance owed. Such a load of garbage to hold treatment for a patient while the higher ups do battle over a balance. Anyway, Dar is the important one, I will pay it and keep up my fight with insurance.

Well, that is what is going on at this moment, stay tuned and please keep those prayers coming, love you all.

Dar/Danny/Jamiesue