May 4th 2010
0650 Hours

Day 4 of Dar's new meds and we are starting to get our "lil princess" back. On Sunday afternoon Dar started smiling again and by 7:00 pm she was laughing with her mom and dad on the phone. She is trying to say and speak some of the words she could say before. This is all great news and I am so thankful to be seeing the return of our "lil angel".

Last night Dar ran another low temp, this morning she was back to normal. I wished we knew what if anything is still going on.

Today Jamiesue and Dar are having a day at the spa, nice bath, pedicure and manicure, even new sparkles on the toes, Dar really enjoys this very special attention.

Friday Dar returns to Enloe Rehab for "pump" titration and it is my hope that this will also help with her comfort level and allow her to relax more.

I spoke with Sacramento yesterday regarding Dar's "place" in line on the waiting list for the State NF/AH wavier that she qualified for a few months back. I spoke with one of the case managers but unfortunatley they have no way of knowing where Dar is placed on the waiting list. I guess we will have to just wait patiently for that piece of information to come in the mail. I do know that it could be a long wait.

Well, I hope you have a beautiful day today and we will keep you posted as we continue this "Journey Back To Life".

Thank you again for all of your prayers and support.

Love to all,

Dar/Danny/Jamiesue