"Something Short"

When I said I would be more diligent about postings I did not think Jamiesue would get sick and then Dar would follow.

Well, that is what has happened in the Mardilla household. I had to keep Jamiesue away as of Saturday morning, Dar came down with a UTI infection again compounded with some respitory issues.

As you well may imagine since we have no other help,the duties have fallen on me to take care of Dar round the clock.

Dar is requiring alot of suctioning and I am keeping a close watch on her O2 sats. It has been very very hectic and without sleep for me since Saturday at noon. Today we finally got some kick butt antibiotics and hopefully we will see positive results by tomorrow evening.

We are off to Enloe Rehab tomorrow afternoon to have Dar's pump looked at as I am concerned she is not getting enough Baclofen. Dar is having spastic movements in her feet, ankles and legs. I have spoken with Dr Dawson in the bay and he agrees we need to have averything looked at, especially since any infection gone untreated too long can get into the pump and then we have serious problems. To date and time Dar is not spiking a high fever. If we reach 101.3 we are off to the hospital.

I hope that the antibiotic will also deal with her breathing issues and get rid of what ever is going on. There is so much to tell you of what has been going on over the last week but unfortunatley it will have to wait until the crisis is over.

If I were to ask for a specific prayer it would be this. Pray that Dar and I will receive some much needed assistance and help in our home. We are in the process of paperwork for In Home Health Support but it all takes time. In the meantime if Jamie is sick I have to take time from work to attend Dar. Thank God for accumulated sick leave and vaction.

Please forgive the lapse in posts and if anyone has any suggestions please feel free to leave a comment or send an email.

Dr Mark, thank you so much for your help, Dar started Leviquinn this afternoon.

As I said please forgive the lapse,

Love to all,
Dar/Danny/Jamiesue