Darlene rested very well last night and even continues at this writing. It seem that after her pump is titrated it takes her a day or to get adjusted to the new dosage.
Yesterday Dar and I traveled to Enloe Rehab and Dr Filbrandt adjusted her pump to 500 mics per 24 hours. This was an increase of 35 mics. Dar was at 465, now she is at 500.
The standard increase I am told is 10 per cent of the current dosage. I would imagine it should not take Dar too very long to adjust to the new setting.
Last night she rested so well that even I was able to get a couple of hours sleep. Her fever has been down all day today and I hope we will be seeing more positive progress as we continue the remaining dosage of Leviquin.
Dar’s “tone” has greatly decreased in the short time since the titration yesterday. Her arms and legs are much less stiff and her hands and fingers are much easier to put her splints on.
It seems strange that if a medication is introduced over a 24 hour continuous period, one would expect positive results over that same 24 hour period. I am learning that is not always the case. There are other factors that come into play, how Dar feels overall, how much pain she might be in, her mood, all these things factor into her “tone” and or amount of it. I will be glad when we can have noticeable tone reduction and Dar has the ability to mentally ask of herself to move parts of her body. We truly believe that she has the mental capability but as to date has not been able to follow through said request with the “purposeful” conclusion. Everyday I wait and hope that she will move a finger, kick a foot, raise her arm, give me a thumbs up when I ask her. What a joyous day that will be.
Tomorrow I return to work and Jamiesue will resume caring for “momma”, Margie will be in about 10:00 and she and Jamie will begin to set up some scheduling so Dar is covered and Jamie can have time during the day to take care of some of her responsibilities that unfortunately can’t be done after I get home from work.
Margie’s daughter Carissa will be in around 9:30 or so this evening to “companion sit” with Dar while I get some much needed sleep. In the event that Dar has an “issue” I will be close by to respond.
It will be so nice and such a relief to have additional help attending to Dar. You cannot imagine the weight lifted from my shoulders yesterday as Margie and Carissa and I spoke and I began to realize that things are going to get better and hopefully a little easier.
Margie came by this morning and learned how we give meds and food and she made a very good suggestion. Her mom is receiving help form Enloe Home Health and has recently received the same Baclofen pump Dar did. When Margie’s mom came home she has a team working for and with the same doctors that Dar has at Enloe Rehab.
It only makes sense that Dar should be doing the same thing. Then we have the advantage of doctors and therapists all working together with a common goal, Dar’s improvement.
Well, I will talk to you all again soon, I HOPE, please continue your prayers and we thank you all so very much for your support. Again a big thank you to “Angels Among Us” for the beautiful angels. They protect Dar every day.
Love to all,
Dar/Danny/Jamiesue
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