05-02-2009
1406 Hours
The photo to the left was taken on a recent wheelchair quad ride to the little hamlet of "Ross".
Darlene and John Murphy took a stroll to this little community park at the end of the pathway with Maverick in tow. Dar loves to be out in her chair as it reminds her of riding her quad. The rougher the path got the more Dar laughed and enjoyed herself.
Not wanting to be left out Dar wanted Mav in her lap so he could have his picture taken with mom. You can see by the photo both mom and Mav are quite happy.
Today finds Dar in great spirits and using her speaking valve again she is building up her lungs and speaking muscles after having had to lay off for more than a week.
We still have not had contact between Dr. D and Dr. Shapiro regarding Dar's dificulty with the "button". Hopefully both doctors will be in touch soon.
This morning Dr. Waters saw Dar and I think there is something the two of them share that must be pretty special. Neither of them will share with me what it is but I am pretty sure there are some secrets they are keeping to themselves. The two of them laugh and there is alot of whispering going on. Dar is not about to give up any information to me, so I will just enjoy that the two of them have something special.
Dr. Waters watched as dar and I played our game of Simon Says and thought it was a great tool to use with Dar as she continues to process information and follow instructions. I won the first couple of games but later on Dar was winning quite regularly.
Dar has such a special spirit that you can't help but participate in her conversations as she works very hard to communicate with those folks around her.
My difficulty at this time is related to her discomfort and her ablity now to communicate with us. It is heart wrenching to know that something is bothering her and she is uncomfortable and while trying to communicate this to us I can't pinpoint it immediatley. It usually takes several questions before I am able to find the issue and then take the appropriate steps to correct it.
I feel like I've been hit by a semi truck at the end of the day. Although it is emotional for me, I can only thank God that we are seeing this continuing progress from Dar. She has come so far and is making such good progress.
Dr. Waters still plans on haveing a specialist look at Dar to rule out any possible problems regarding the frequency of Dar's UTI infections. Both Dr. D and Dr. Waters are very pro active when it comes to infections and heading them off at the pass. Probably more because of having had the "Cath" are they taking this proactive step. Dar's hydration is very good.
As I type this blog Dar is resting very peacefully with her "trach cuff" deflated and her speaking valve on. Her numbers are great and she looks ever so peacefull.
We are both looking forward to her being able to have some of her "favorite regular food" very soon. Only haveing the speaking valve on since yesterday, Dr. D wants to make sure that all is in order for Dar to start having her special food.
I will return home later tonight to pay those nasty bills that seem to come at the beginning of every month.
Always seems to be something to do.
I thank those of you that have taken a moment to leave a special comment for Dar and I. It really means a great deal to me to find them at the end of the "posts".
I have had several comments about the poem I posted the other day. Thank you for sharing your thoughts.
Remember, you can find the comment link at the bottom of each post. All you have to do is sign in as "annoyn" write your comment, verify the security letters and then hit submit. Thats all there is to it, and they do mean alot to me.
Well, I hope you all enjoy your weekend and please, please remember, Dar and I could not get through this without your love and support.
John Murphy is doing well in his new "digs" and the family is looking forward to his return home.
Rye Spitzer continues to improve and is now wearing his speaking valve too. We continue to uplift his family and friends as they too travel this road to recovery.
Have a great weekend everyone, we love you all.
Dar/Danny
5 comments:
Let's see. You're exhausted at the end of a day. Darlene is exhausted from her workouts. Now I can understand why they talk about a dog's life. Mav is the only one who seems not to be exhausted. Don't get too worn down though. Remember, it's an ultra marathon.
David
Dan, I can tell from the new picture that Dar continues to improve. Mav is a beautiful dog! I love to read your blog. Post a pic of the 3 of you together next time you are there.
redhatlady
So glad I found your random comment on Ken Reimer's page so I could find out about what is happening in your life. Wow... that's all I can say.
We have all had our challenges this year, haven't we? At least we can be praying for each other, and that's something really important! Keep us posted.
Deb and Al
Seems you love the late night hours and I'm sure it is because you can't sleep.....Prayers and love to both you and Dar. Again, each and every morning as I pass by Bangor School and see your truck, I think of both of you.
Carla Held
My prayers to you and Dar...Have kept up on her journey and amazed of the strength the two of you have shown. You are an inspiration to people and I wish you both well and continued success. Enjoy reading about her daily hurdles and successes and for people that haven't gone through something like this. can only imagine what it would be like. Blessings to both of you,
Post a Comment